Participating in Mental Health Foundation Research
Health and care research should serve the public interest, which means that we have to demonstrate that our research serves the interests of society as a whole.
We do this by following the UK Policy Framework for Health and Social Care Research. We sometimes use personally-identifiable information to conduct research to improve health and care. As a charity, we have a legitimate interest in using information relating to your health and care for research studies, when you agree to take part in a research study. This means that we will use your data, collected in the course of a research study, in the ways needed to conduct and analyse the research study. Your right to access, change, or move your information are limited, as we need to manage your information in specific ways in order for the research to be reliable and accurate. If you withdraw from a study after it has finished, we will keep the information about you that we have already obtained. To safeguard your rights, we will use the minimum personally-identifiable information possible.
If you wish to raise a complaint on how we have handled your personal data, you can contact our Data Protection Officer who will investigate the matter. If you are not satisfied with our response or believe we are processing your personal data in a way that is not lawful, you can complain to the Information Commissioner’s Office (ICO).
Our Data Protection Officer is John Tyson, and you may contact them at [email protected].
What Happens to your Information After Participating
When you agree to take part in a research study, the information about your health and care may be provided to researchers running other research studies in this organisation and in other organisations. These organisations may be universities, NHS organisations, or companies involved in health and care research in this country or abroad. Your information will only be used by organisations and researchers to conduct research in accordance with the UK Policy Framework for Health and Social Care Research.
This information will not identify you and will not be combined with other information in a way that could identify you. The information will only be used for the purpose of health and care research, and cannot be used to contact you, or to affect your care. It will not be used to make decisions about future services available to you, such as insurance.
How Can I Participate
If you are interested in participating in Mental Health Foundation research, you can review a list of our current projects here. Projects that are currently recruiting for research participants will be clearly listed here.