Service users should be more involved in research

Release Date: 25 July 2011

Source: Mental Health Foundation

Country: United Kingdom

This month our PROMISE study (Patient Reported Outcome Measures In Systematic Evaluation) was published in the Journal of Mental Health. This project was aimed at finding out which outcomes people felt were the most important to measure when evaluating the success of mental health interventions.

This project was in partnership with the Imperial College and the Institute of Psychiatry. We interviewed people with a diagnosis of depressive disorder, bipolar disorder, or schizophrenia and asked service users to rate a series of psychometric scales, which are commonly used in evaluating the effectiveness of mental health interventions.

The findings revealed that people with lived experience should be more involved in research on mental health interventions and that they should be asked what they feel is working best for them. Many participants felt that research was often being done through talking to professionals and not people with lived experience. They also felt that it was important to consider the relationship between the client and professional, as this would be key to the success of any treatment or intervention.    

This project is now complete and the findings have been reported in the following article: Crawford MJ, Robotham D, Thana L, Patterson S, Weaver T, Barber R, Wykes T, Rose D (2011) Selecting outcome measures in mental health: the views of service users. Journal of Mental Health 20, 336-346.

For a summary of the findings, please contact us.